Rick Patrick
reporter3.riverbendnews@gmail.com
It is likely that a little over a year ago, Amber Moore had never even heard of “Adenosine deaminase 2 deficiency (ADA2).” That is understandable, since the condition is extremely rare, with fewer than 700 known cases worldwide. There is no known cure for ADA2. A 2021 study conducted by the DADA2 Foundation, Boston Children’s Hospital and the Broad Institute suggests there could be as many as 35,000 undiagnosed patients affected with the condition. Now, Moore has become very knowledgable about this rare genetic deficiency, because her 15-year-old daughter, Hannah, was diagnosed with ADA2 last year. Hannah was admitted into the hospital with basically no white blood cells. White blood cells are crucial in warding off infections.
Hannah was admitted to Children’s Hospital of Atlanta on Tuesday, June 10, and received chemotherapy treatments in preparation for a stem cell transplant. She received a successful Stem Cell transplant on Tuesday, June 24. At this time, Hannah remains in the hospital waiting for the stem cells to graph. It is expected that Hannah will remain in Atlanta until at least late August.
This ordeal has had a significant financial and emotional impact on the family. Currently, those wishing to help the family have a number of options. Donations may be made through CashApp at $dunkdunk90 or via Venmo at @Dunkdunk90. Those who would like to make a donation by either cash or check made payable to Amber Moore may send them to Riverbend News at P.O. Box 6034, Live Oak, Fla. 32064. You may also bring cash or checks to the Riverbend News office at 113 Duval St. NW, in Live Oak.
Hannah is the daughter of Andrew and Amber Moore and Travis Albritton. She is a student at Berrian High School, in Nashville, Ga.